The Day The Tears Came

Soundbites from a South East London Carer/Care-Giver

 © Robin Thomas Quinn  

(Artie Q) 

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Chapter 2 - Gryphon Life

Hollywood, 30 years ago; I’d gone to LA to take the music world by storm. With videos to accompany my original songs, no one really knew what to make of me. Along the way, however, I got involved in all kinds of entertainment, and then at last #TwentyF’inYearsLater, four of my songs got placed in a Hollywood movie. Finally, Finalement my tracks were being validated by music industry professionals—Yeehah, I’d arrived! So there I was living the life in LA … then I got the call from Dad.

“Think it’s time to come home, son.” Hmm …

It was 2008, and ‘home’ was in suburban South East London, a far cry from the magic of Hollywood. Dad was 86, Mother 91, living in the 2 storey family home they’d built nearly 50 years earlier, but now life was becoming just a little too much for them. (Or rather, Dad.) Though they wanted to end their days in their own home, it was clear to my father (body wise & mentally still fairly capable) the physical support Mother needed was becoming a little more than he could handle. And her state of health was ongoing in slow steady decline.

Since going to LA, I’d returned infrequently but on a somewhat regular basis to check on them, however somehow I kept putting out of mind their future/the inevitable, annnd it’d been about 5 years since my last visit. Yikes! Now, it appears, it was crunch time.

So, two options: Live-in-Care or “Rob!” As they really didn’t want a stranger living with them (and I gotta say, I’da felt a lil weird about that), the choice for me, albeit a massive inner struggle, was clear. I well remember the reasons for leaving the UK (I’ll go into that another time!), and America had given me my “creative wings to fly.” Soar, actually. I’d just started recording/producing/mixing and mastering my own songs. Two albums done and I was networking via my movie songs success; I was on a roll.

If I leave for the UK, can I still keep my newly found momentum & profile in LA going? And for how long? Hmm … Oh, Fuck it; let’s do it ’n see!

So, throwing “should I/shouldn’t I” inner turmoil to the wind, over the next two years I segued life incrementally from Hollywood to Chislehurst, Kent on the outskirts of London town. With the tying up of loose ends in LA (a couple of trips, coming & going) it allowed me a realistic overview of the state of affairs back home.

At this point, Mother had recently been diagnosed with Alzheimer’s and was totally dependent on her husband; officially he was registered as her carer, providing crucial attendance when it came to meal times & bathroom routines. Though Dad himself was having prostate and other medical issues he was still able to perform all household chores, do the cooking, garden work (front & back), walk to the corner shop for the daily paper every morning, drive himself & mother to the local town for their weekly Monday morning Get-Outta-House, and once a week do the grocery shopping & any banking affairs. 

During the initial few years, I was most careful not to usurp his independent work lifestyle, but simply be of support should he need it; I wanted him to be as unsupervised for as long as possible. It also gave me a procedure to observe should he start to falter. In effect I started ‘Gryphon Life’ (the name of the house - Gryphon *) as his gopher; his go-to guy should he need an extra pair of hands for any sundry work around the place.

But all in all he was doing a great job, especially with the Big 9-0 on the horizon. And he was most open to any suggestion he might not be up to any task at hand.

“Take the keys away from me anytime, Rob, should you think I’m a danger on the roads.”

To his credit, he drove right up until his 94th birthday, 3 weeks before he died; and every single time he returned from driving solo, I’d go over that vehicle w a toothpick, a micro eye … Never, not once, ever, a single scratch! Amazing.

At first, Life with the Oldies yielded little in thoughtful observation, but as both Ma n Pa’s ailments increased bringing about a life I could never have imagined, all kinds of newly perceived life revelations (both humorous and melancholy) were brought to bear. I have to say the exchanges between Mother and myself became “head-shakingly” comical as her condition deteriorated, whereas with Dad as his health began to really decline in his last two years, he & I began to butt heads over the critical dietary & medical care needs of Mother.

In her day, Ma was a remarkably capable woman. Sargeant Pearl Averil Turner: Ambulance driver, Motorcycle dispatch rider during WWII, Staff car driver on occasion to The Man himself - Sir Winston Churchill! And after the war - Shorthand typist, ‘Meals on Wheels’ delivery driver, Dressmaker, Spirella corsetiere fitter, Leather coat-bag ’n key fob maker, Milliner, Homemaker, accomplished in many styles of cooking—“Nothing in this house, shop-bought, Rob” she’d say ... aaaah, so many things she could turn her hand to … but that was all Yesterday; and because my time with her at the end was lengthy, intimate & intense, my memories are more shaped by those final days. (Mother’s surname became Quinn when she married my father, Terence Quinn.)

It was now 2012, and though Dad was still on top of things, I had officially become his Carer. (US - Caregiver)

* Gryphon - “Get Rich Young, Pin Hopes On National” - National: the company Dad worked for when he realised his home owning dream

Performance Artist: Artie Q's "Sometimes in the Rain" music video is 30 Years Old! Click the Pic below to View & Listen -                                      

Click the Pic

Chapter 3 - Where Did You Go?

The Alzheimer’s sufferer views their world through an ever decreasing small lens. It can shrink incrementally day by day until friends and family may no longer be recognised. Though Mother had the Big A, her cognitive powers didn’t seem much affected initially (it was more her physical side), however at times I’d wonder. Often she’d be on point; at others, less so. Difficult to place as her terms of greeting & engaging, especially with me were always playful …

“ ‘Oo ‘re you …?” 
Who are you was Mother’s go-to greeting to me, always delivered with big frown becoming a cheeky grin.
“Well, who d’you think I am?” 
“Oh don’t be silly.”
“What’s my name?” 
“What…? Don’t know what you’re talking ‘bout.”
“Go on, indulge me. Who Am I? 
“You’re my son, Robin, of course … don’t be daft.”

Phew. Just checking, Ma! Though sometimes … I was never absolutely sure if she was being serious. Still, it was a fun exchange and one that I was always happy to engage in. “Playtime with Mother.” However if we’re having a bad day, I’d sit and hold her hand.

“So, what's my name ... … … Mother?"  (*Prompt*)
*Silence*— 
“Cmon, you know me, what's my name?" 
“… Don't know what you're talking ‘bout—”sharply withdraws hand.
“Mother, my name is Robin. I'm your son, and your name is … is …? Pearl Averil ...? All right, all right. How 'bout this: Sargent Turner, 137?” 
“—203!” She barks right back. And with a big smile looks into the distance as if remembering …

Strange, she doesn’t know who I am, but will always remember life from 70 years ago. Well, maybe not so strange; Service Personnel ALWAYS remember their number! Hmm … And diminishing alongside, their personalities can also fade …

“Mother ... are you in there ... where did you go, eh? Where Did You Go?"  

“Even though I watch you fade away, the “ma of yesterday,” surely you remember my name?
Well I know the light is dim, and dimming everyday, and it just keeps getting farther away.
Where did you go …? Your world is getting smaller by the day, I wonder when you’ll be no longer ‘you,’
Where did you go?”
Lyrics © Robin Thomas Quinn

Where Did You Go? by Artie Q - Click below to listen

Chapter 4 - Slowly Kissing You Goodbye

As Gryphon Life began to double down in intensity, my only real emotional & creative release was to write about the journey in song and video; definitely a lifesaver for me. Though in a sense this was nothing new: me writing songs about my mother & my relationship, that is; Dad, not so much - Oedipus!!! Moi!??? 😱 ... 😉 As far back as 1984 I’d written “Chislehurst Rose.” (Chislehurst, the name of the town in which we lived.) The title was her term of endearment for me (though most folk thought it the other way round) and written from her perspective. She had a thing about folks lying to her, especially me …

“You can say just what you please, words alone won’t satisfy. Need to show you what they’re made of, need to prove that they don’t lie … I’ll always love you …. Chislehurst Rose, I love you.”

Mother’s childhood was a most troubled one, and I was never sure how much that affected her feelings & behaviour later in life. “Don’t ever lie to me … or I won’t know if I can trust you,” was my mother’s rule of thumb, and in a sense all about her & her insecurities, especially from youth.

So. Now, along with Mother’s memory issues (Alzheimer’s) was her hearing loss. Though she had a hearing aid, it would endlessly fall out during snoozes in her fave go-to place (a well cushioned bench seat in the corner of the kitchen) or be turned off by her, either by accident or cognitively.

I suppose because of the frequency of hearing aid loss & memory decline, routinely her go-to response to almost any question whatever subject: “Whaaaa …?” Even when fully present on a ‘good day.’

When we-all-three would venture out on a Get-Outta-House Monday or do the weekly shopping, the combination of her decline would frequently give rise to all kinds of head scratching moments. Dad would be in charge of the trolley loading up groceries and I’d be pushing Mother around in her wheelchair.

“Have we got enough butter, Dad?” (Me.)
“Whaaaa … buzzer?”  (Guess who???)
I pull Dad aside.
“An she thought she heard—“
“Ave you got a buzzer! - Hah hah hah … and off he’d chortle on his way to the next on his list.

Her confusion on these trips was often heightened by the fact I was recording visual footage of Gryphon Life to document and add to my music videos.

“Give us a smile, Mother.”
“ ‘Oo you takin pictures of?”
“You, Mother.”
“Oooooo … she mouthed her discontent … “what for?”

And on throughout the supermarket.

“See that ring, Ma?” 
I was now kneeling, our heads level as I produced my band of gold. 
“Yeah.”
“That ring means I’m married; did you know I’m married?”
“No … … …?” 
Her face lost in confusion for a full 10 seconds, and then Bingo!
“Oh really …??? …” 
She turns to my father.
“Did you know he’s married, Dad?”

I had even invited Ma n Pa to my Californian wedding a few years earlier (now though, my wife & I had decided to separate); Dad & I agreed it would not work due to Mother’s growing health decline.

And though the song “Slowly Kissing You Goodbye” was recorded in 2010, as far back as 2006 during my weekly one hour phone calls to her alone from LA, there was the occasional sense of her “forgetting stuff/being a little vacant/tho nothing wildly suspicious” … even then. Btw. Mum n Dad together received a separate 1 hour phone session later on in the week/every week, and my marriage was a much discussed topic for a while … Oh, Ma …

“Now, on the phone with so many miles away, over time I can feel you slip away, not ready for that fight; 
I just don't want you to go ... It's like I'm kissing you … slowly kissing you goodbye”
Lyrics © Robin Thomas Quinn

Slowly Kissing You Goodbye by Artie Q (featuring Aeronaut) - Click below to listen

Chapter 5: Just One More Moment

”There were times when I was giving care that I felt all alone, even in a room full of people."

This quote from a friend got me thinking, casting over certainly one of the more intense journeys I’ve traveled.

My 'feeling all alone times' (though not in a room full of people) were usually around 2 - 6 am when I’d hear my mother fall out of bed in an effort to make her way to the bathroom unaided. 95 year olds can tend to “slight clumsiness in the midnight hour,” especially when a walking frame is 100% required during their most present and physically capable daytime hours. (As with Mother.) 

As a result, I slept on the living room couch beneath Ma n Pa’s bedroom specifically to be on hand should “I wanna go wee wee” happen in the early hours of the morning. I also installed a baby monitor to hear any unsupervised night-time shenanigans!

At these times of urgency (hearing the warning "clonk" on the ceiling) I’d rush upstairs, and Dad (who slept beside her; they both had separate single beds) and I would walk my mother slowly to the bowl. (Me supporting her from behind, my hands under her arms; Dad in front shuffling backwards, guiding her walker.)

I would then retire to a place of attendance, allowing my mother to do her business in private with my father supervising. At the top of the stairs I’d wait for Dad to yell "Ready, son“ - so the train would then proceed back to bed. Invariably, she hadn't quite emptied her bladder, so, baaack we'd trundle to the bathroom for the next evacuation, and I'd remove myself to my go-to spot, waiting … On a very rare occasion, this procedure might even happen a #TediouslyTryingThirdTime - Uhhh!

Invariably, these incidents would take up to a full hour, and I must admit at my lowest point @ 2/3/4/5 o'clock in the morning, I'd get “that thought;” you know the one I'm talking about…? The "What the F**k am I doing??? Where the F**k is my life going???" One. I lived with my folks for the last 7 years of their lives, and I loved my parents dearly and would not have missed that ‘Care Giving Journey with them to The End,’ for the world; but at times, at the lowest of points, I completely related to my friend’s quote.

On the plus side, of course, is that everything can and will change … either way; question is: how can we get the good moments to last?

“Mother. Oh, Motherrr!!! It’s the First Day of Spring!”
“Ooooh, I know.”
“Well, with all these terrible things going on in the world, we got a reason to be cheerful, grateful even, right?”
“Ooooh, I know.”
“And tomorrow it won’t be the First Day anymore, it’ll be the 2nd. So, how can we hold onto the moment; make it last, I mean…”
“Ooooh, I know.”
“Hmm … I guess all any of us have is the here & now, and at some point it’ll be over … I s'pose all we can do is simply enjoy it all as it goes by ... So, in conclusion, as long as we have & be aware in the moment, we’re ahead of the game, yeah?”
“Ooooh, I kno—“ 
“Yeah, yeah, yeah, I know You know! Question is, does anyone else? Us humans tend to get a lil complacent even when we have so much to be thankful for …”
“Ooooh, I know …” 🤔😳😱

No matter the hours we spend with those we love, when time is in short supply and the moment comes to an end, we always want just one more …

“It's so unfair this getting old; Mum 'n Dad are childlike to you, now. They have been waiting for the one to set them free, 
and you are home now, rest easy. The time we give the ones we love, we always want just one more smile … Just give me one more moment in time.”
Lyrics © Robin Thomas Quinn

  "JUST ONE MORE MOMENT" - Click the Pic or Link below for Music Video by Artie Q —>
 https://youtu.be/VN8ssUX6ka0